Hoopla Teal

Tuesday, June 12, 2012

Well, it's been a while and a lot has gone on...
First off, we had an endo appt last month.  I suppose it went alright.  A1C was 9.7, higher from last time (9.2).  Right now, they would like that number to be 8.5.  We've added another basal rate, so she gets a different dose from 4am-8am since we were having some serious lows in the mornings.  Seems to be working so far. Although, Friday, June 1, was hit a new low...42!  Holy goodness!  And no signs of a low!!  It wasn't until after we knew that she got sleepy and fell asleep on my mom's shoulder.  The continuous glucometer is starting to sound really good right about now.  (the continuous glucometer-CGM-is a device that will check her blood sugar continuously-duh-and alarm when it's not in range)  Right now I feel confident that I can check Piper's sugar only at meals and bedtime.  She never shows any signs that I should check her before those times.  Apparently that's starting to change.  I, of course think that the times I check her are 4 times to many...I shouldn't have to prick those little fingers every day...her pancreas should be doing all that it's supposed to be doing, but I will most definitely comply so I can keep my daughter alive each day.  That's a lot of pressure...most days it's just routine and I don't even think about the life or death situation we deal with everyday.  We haven't had any crazy emergencies yet...or busted out the glucagon (oh I dread that day).  Just a side rant that I had to go with to emphasize that I hate diabetes.  That same day, I dropped a half-full vial of insulin and it shattered...oh, happy day!  Diabetes just really sucks. 
Fortunately, that day turned around really quickly.  My sister and niece drove all the way from Memphis to be with me and Piper for Piper's 2nd birthday!  It was a total surprise to me!!  Piper had a wonderful birthday!  She got to eat a super yummy cupcake and LOTS of pink icing!  Her numbers seemed to do alright after such a sugar overload.  And, yes, in theory, she can eat whatever she wants as long as we cover the carbs. 
A Mickey and Minnie Family
Happy Birthday to my Sweet P!
Good Morning, Birthday Girl!!











Right after birthday festivities, me and Piper head up to KC with Mom.  We went to Michigan with her and my grandparents for a little "reunion".  Piper went on a 10.5 hour road trip!  She did so great (minus the low of 47 the morning we left).  The girl just needs her DVD player and either Rapunzel or Toy Story (preferably 2 or 3...with Jessie) and she's set.  I got to explain Piper's diabetes to a lot of relatives.  I really thought I was going to get burned out on talking about it, but I wanted to let them know what type 1 is all about...especially since a few of them have type 2.  Sorry Gray...I just can't reuse the same lancet until it stops "poking".  :)
My bone marrow family, The Gaylords, Sue and Kate and Claire
Me and Piper were also fortunate enough to visit a very special family I know.  10 years ago I had the privilege to donate bone marrow to a 15 year old girl from Michigan.  We had to wait a year before we were able to know who each other were, but I've had a life-long bond with the family since.  I was able to meet Sarah in the winter of 2003.  She unfortunately relapsed and lost her battle with leukemia that August.  This has been my first cause that I have advocated for.  Getting people to get on the bone marrow donor registry...raising money for St. Jude Children's hospital (also where my sister works).  This is something that needs it's butt kicked as well! 
Well, another side rant...this post is just all over the place!
Road Trips are Awesome...my road warrior!
We got back to KC then eventually OKC safely.  A wonderful trip with just a few diabetes issues.  One low of 47 and one high of 388 with 1.9 ketones...both taken care of very easily.  Piper had a lot of late nights, early mornings and struggles of naps.  We went to church with my mom in KC.  I went to get Piper from nursery and I find her passed out in a crib.  I swear my heart stopped.  She NEVER just falls asleep, especially while in a "play" setting.  I immediately grabbed her testing meter and almost reached for the glucagon.  I was just certain that she was extremely low.  210...the girl was just worn out!  Oh my...still not sure I have fully recovered from that scare. 
 Also...I want to share a link a friend of mine told me about.  Her husband works for the band MercyMe.  The lead singer, Bart, has a son with type 1.  They've started a webpage and have a faith-based diabetes camp in Texas.  I don't know if we will be able to go this year but definitely something I want to do in the future.
http://imagineacureonline.com/
http://imagineacureonline.com/iac-programs/family-camp/
Well, many apologies for my "all over the place" post.  I'm already a little scatter-brained but I'm also typing this during game 1 of the NBA finals...I always get nervous and feel like I can't fully focus on the game...but GO THUNDER!